The Reality we live in...

Through Reagan, we have met some phenomenal people.  I could go on and on about amazing stories that have been shared with us.  People's lives that Reagan and Addy touched.  The amount of prayers that our daughters have received.  The amount of hope, faith, and love is purely endless....

One particular person just experienced a recent loss.  She has been extremely kind to allow me into her life and share her family and her experiences.  For that, I am forever grateful.  I frequent a few message boards and blogs these days, so that is how I know this individual.  Just last month, she lost her twin boys after they put up a heck of a fight to live.  My heart breaks for her daily, as does my heart for other parents who have been dealt the road of giving birth to angels.

She shared something on her blog just recently that just inspired me to write this post.  I was full of hope and faith while I was pregnant.  I felt His presence all the time, but as the road of grief continues, I find myself waning.  (Hence, the Lexapro they put me on).  Anniversaries are on the horizon and life is just tough.  I'm excited about Addy's first birthday, yet dreading it in the same token.  I know deep down it will all be "okay," but the build up to the day is just excruciating.  Don't get me wrong, emotionally, I am good, but the road of grief just catches you at times, and it doesn't help that Addy has had a 101.0+ fever for the last 30 hours and that I caught some sort of flu bug myself.  It's just when I run across these things, you cannot help but be reminded of it all.....

This video is about a blog that my friend found.  The couple just lost their daughter a few weeks ago and much like we received a fatal diagnosis early on, so did they.  The difference?  We had a healthy baby and a sick baby, so termination was NOT an option.  Period.  Had Reagan been our only child in utero, who knows what we would of decided.  This family has shown amazing strength and their daughter, Audrey Caroline, whom they chose to carry on with her life until 34 weeks (14 weeks after her fatal diagnosis) has touched the world.  The gist of her condition was no amniotic fluid (same as Reagan), polycystic kidneys (Reagan had abnormal kidneys too), and an enlarged heart (Reagan's heart was squished by her bladder).  This little girl lived 90 minutes.  Reagan lived 87min. 

Her mommy & daddy and a few friends co-wrote this song (her daddy is a member of a Christian group - Selah).  It's an amazing tribute to a beautiful life that taught so many so much, much like Reagan did....

Watch Audrey Caroline's video.

 

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Comments

  • 4/29/2008 7:19 AM Jude wrote:
    Oh, Kaycie... thank you for sharing that video. I am so moved I don't really have the words, but the three girls sitting on the ground in front of Cinderella's castle with that extra hat... I started crying then and haven't been able to stop.

    I am glad to have "met" you through the forums.

    xo
    Jude
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  • 5/5/2008 8:42 AM Amber wrote:
    Thanks for sharing that video with us. It brought tears to my eyes thinking about your family and theres.

    I too lost a baby girl during my first pregnancy. Unlike you, I didn't know that anything was wrong with her and she was taken away out of no where.

    Just wanted to let you know that you are not alone when thinking about Reagan and Addy. I hope that you can find peace in all of you upcoming anniiversaries and Birthdays.

    Thanksing of you always.

    Amber (waitingtobe - FF)
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  • 5/7/2008 6:58 PM Wendy wrote:
    Oh my, I am sitting here bawling.
    Reply to this
  • 5/8/2008 9:40 AM Katie Swift wrote:
    Hello,
    I cam across your blog in researching a ureterocele. Let me first say I am so sorry for your loss and both of your babies are so beautiful. I can't even imagine how hard going though all of this has been for you both. My 18 month old daughter was just diagnosed with a ureterocele, from your picture it is exactly the same as your daughter. She also has an extra kidney as well that will need to be removed. My question for you is what doctor did you go to for this? I know this was done while you were still pregnant, but I am curious. We live in the Tampa area and are going through a heck of a time trying to find a pediatric surgeon who does this. Any info you have would be greatly appreciated. Thank you again. MY email is Kates2118@aol.com.
    Reply to this
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