I think we're on the upswing...
Well, the hospital is a not so fun place to be, but where I need to be. I had a rough evening.
A PICC line for those who don't know runs up my left arm and it feeds into my chest close to my heart. I don't feel the burn of medications and I get pretty instant pain relief once they push the drug in because it hits your heart and your heart just pumps it out quickly. So, it has it's benefits. Well, 2 issues we had. One was just annoying. My PICC kept kinking and would stop my IV from running. This happened at least 10 times yesterday. Finally, a kind nurse of mine last night moved my wires around and I only have set it off once now, but there is a permanent kink in my PICC, hopefully I don't have it long anyway.
The other issue is that I was having pressure in my chest last night. My blood pressures have been steady around 130s/80-90s...that is SUPER high for me, but they told me if you are on a LOT of fluids (as I am) it can cause that, so they aren't concerned. But, I just felt "funny" last night. Felt off and it was making me nauseated. By the time the nurse caught wind of all this, they ran my vitals and called the doc and then did an EKG. My EKG was normal. But this was around 9pm and all I wanted was a stinkin' shower for the day! I got nixed of it!! I was so exhausted, she just hooked me back up to the fluids and I drowsed off. I was awakened, as normal, at 5am for blood draws. And then Dr. Rusche came in at 7am, on the nose!
As for last night, Dr. Rusche said we could move to an all liquid diet. So, I get Ensure and pudding now. My stomach gurgled horribly last night. But, he said that was fine.
This morning, he came in, and my hemoglobins are holding steady. I'm less tender, which means it's healing and the steroids and Remicade are starting to kick in. All of my cultures have come back negative and therefore, he is taking me off antibiotics. I'm just on electrolytes and then moving to an all liquid diet and maybe I'll get to try real food in a day or too. It all depends on how today goes.
We're on the upswing. This blog entry seems all over the map, but I'm a bit scattered I think. I just want to get home to my little girl, quite honestly! But, then I know I need to rest. I did get to hold her while she took a nap last night and that was wonderful. It's been hard for me to handle her lately because of the IV, but after Daddy got her to sleep, I held her... loved every second of it!
Off for now, will update more later...
A PICC line for those who don't know runs up my left arm and it feeds into my chest close to my heart. I don't feel the burn of medications and I get pretty instant pain relief once they push the drug in because it hits your heart and your heart just pumps it out quickly. So, it has it's benefits. Well, 2 issues we had. One was just annoying. My PICC kept kinking and would stop my IV from running. This happened at least 10 times yesterday. Finally, a kind nurse of mine last night moved my wires around and I only have set it off once now, but there is a permanent kink in my PICC, hopefully I don't have it long anyway.
The other issue is that I was having pressure in my chest last night. My blood pressures have been steady around 130s/80-90s...that is SUPER high for me, but they told me if you are on a LOT of fluids (as I am) it can cause that, so they aren't concerned. But, I just felt "funny" last night. Felt off and it was making me nauseated. By the time the nurse caught wind of all this, they ran my vitals and called the doc and then did an EKG. My EKG was normal. But this was around 9pm and all I wanted was a stinkin' shower for the day! I got nixed of it!! I was so exhausted, she just hooked me back up to the fluids and I drowsed off. I was awakened, as normal, at 5am for blood draws. And then Dr. Rusche came in at 7am, on the nose!
As for last night, Dr. Rusche said we could move to an all liquid diet. So, I get Ensure and pudding now. My stomach gurgled horribly last night. But, he said that was fine.
This morning, he came in, and my hemoglobins are holding steady. I'm less tender, which means it's healing and the steroids and Remicade are starting to kick in. All of my cultures have come back negative and therefore, he is taking me off antibiotics. I'm just on electrolytes and then moving to an all liquid diet and maybe I'll get to try real food in a day or too. It all depends on how today goes.
We're on the upswing. This blog entry seems all over the map, but I'm a bit scattered I think. I just want to get home to my little girl, quite honestly! But, then I know I need to rest. I did get to hold her while she took a nap last night and that was wonderful. It's been hard for me to handle her lately because of the IV, but after Daddy got her to sleep, I held her... loved every second of it!
Off for now, will update more later...
Sounds like you are on the upswing
Right now you do need the rest, so take all that you can get- remember what you have to chase around after you get home
I am keeping you in my thoughts and in my heart- hang in there!
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