Well, the day has come!  Testing day at Wash U for the clinical trial.  Wish us luck.  The worst of the testing is over as I had to do it at home.  I'll spare you all the details, but let's just say I hope to God I never had to collect my own sample EVER again.  I thought I would want to be a nurse after all I've been through, but I think I'll work in the NICU if that happens because well, seriously, baby "samples" are MUCH different then adult "samples," and I'll leave it at that!

If you are the praying kind... here's what we need prayers for...
1) That the test get all done today and sent off (critical in order to get the infusion by Friday).
2) That I get APPROVED for the study.  All my tests go through a special lab....let's hope and pray that happens..
3) That I get the ACTUAL DRUG and NOT the placebo!
4) That are travels are safe!  (And pain free - tho, I think I'm going to need a pain pill soon!)

Will update more later... maybe tomorrow.  We'll have some downtime, but we're staying with some wonderful family and we can't wait to spend time with them too!

Ta ta for now!